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Mariléa 2018-07-04T11:51:01+00:00

Mariléa

Once upon a time when I was 6, on November 20, 2012, I went to the emergency room because my body was blue like a smurf

Once upon a time, when I was 6, on November 20, 2012, I went to the emergency room because my body was blue like a smurf.

I had to stay for 9 months in a sterile room to treat my blood disease, a severe aplastic anemia. During that time I “sipped” liters of blood and received lots of platelets because I wasn’t able to make my own any more. My doctor decided to give me a real chance to make a fresh start, and to produce blood cells all by myself again. I received a bone marrow transplant thanks to 1 chance in 1 million to find a nice person who gave it to me on June 25th, 2013 at 3:30 pm sharp!

It has been long journey until then.

I had a GvHD * which affected my skin “it burns, it stings”, and my eyes ” I couldn’t stand strong lights” as well as many other disagreements such as eczema, asthma and allergies.

BUT today I am alive and I raise public awareness about blood and platelets donation, I also encourage people to become bone marrow donors and support research programs on complications.

At 6 years old I didn’t really realize the impact of this transplant on my everyday life.

Today I know it represents a second birth (that I celebrate each year by walking with my friends on June 25th) and it gave me a second mom somewhere … in France ”

Mariléa, 11 years old, with the help of her mother

* graft versus host disease